Good morning,
Sorry, I haven’t written in so long. I don’t have any big excuses, just not
feeling like doing anything I don’t have to.
We ended up leaving at 3:30 am for my trip to St. Louis. Now that’s too early to be up and on a long
drive not to have any fun. Six Flags
wasn’t open yet, or I’d have tried to go there instead of the hospital. We got there with a little time to spare. So, we didn’t have to jump through hoops to
get to radiology. There was no prep for
the MRI. They said I could eat and drink
and it wouldn’t affect the test. So, after
putting my sister in charge of protecting my diet coke I went off to have some
pictures made. The results were supposed
to be ready in time for my appointment so the doctor could give me the
results. It wasn’t of course. My sister had fun (not really) telling this
doctor that I wasn’t thinking clearly.
Always a problem with ammonia building up in the intestines and the
residual problem shows up as being terribly forgetful, and saying one thing
when meaning to say something else. I
hate the medication for that. It’s
almost like drinking honey. I like
sweets, but this is ludicrous. The
pharmacy told me I could add something to help the taste. First I added a package of crystal light that
absolutely was the wrong thing to do—in that just made it even sweeter. I finally realized that the plain unsweetened
Kool-Aid that I grew up with would
flavor that stuff, and help shut down some of the sweet. It’s still something I have to force myself
to take. I’m afraid I’ll be on it until
I have a transplant or until I die-ugh!!!
My coordinator, Valorie, called and let me know the results of my tests.
My meld score is 8, it’s slowly working its way up. The lower it is the better. If I understood her correctly, my MRI didn’t
show any cancer and the spot on the back side of my liver is gone. Like I said, if I understood her. I have an appointment with Dr Ng, and I want
him to explain some things for me.
The next round of Doctor appointments have already started. Dr. Ng, Dr. Lyons and Dr. Paulk. Sure hope no more get on my schedule.
My sister, Leslie, had to go to St. Louis for a procedure. She had a mass on her kidney, and they were
able to go thru a vein up to the mass and stop the blood flow to it. She’ll have to have another MRI to make sure
it worked. Her Doctors seem to be really
knowledgeable and compassionate. So now
that that issue hopefully has been taken care of, she gets to move on for her
liver issues. They did a biopsy last
week and she’s waiting for results. It
might not even be cirrhosis!!! If it is,
they think it might be one of the many types of cirrhosis that medication can
slow down, or even cure. No, I don’t
have that type, but if one of us had to have the kind I have, I’m glad it’s
me. She’s got a husband and 2 kids. Michaela is almost 20, and Loren is almost
28. I just have to worry about Jerry, my
mom, and our puppies.
It’s Mother’s Day. So to
all you moms, step-moms, and those to Mother anyone in need—HAPPY MOTHERS DAY! I hope you get to spend the day with family,
lots of good food, and… Sorry, forgot
what I wanted to finish off with.
CYA,
Arlynda
